Gender

Male

Location

Southampton, Hampshire

Birthday:

August 19

What's your role? Network Creator (NC) or Admin?

Network Creator

Tell us a bit about your network (example: Creators is a community of Ning Network Creators who gather together to collaborate, troubleshoot, and share tips and tricks)

We are a group friends who have all been diagnosed with the neuromuscular disorder Myositis, which is a chronic debilitating and rare disease. We want to promote Myositis Awareness around the globe and provide a place where others who have been diagnosed with this disorder can come for help and support and partake in the discussions on the forum where we delve into the 5 different strains of this disease. We are here to help new & existing patients cope with living with Myositis which is a seriously disabling disorder for which there is no known cause and for several of us there is no treatment either. We have to manage this as best we can, and provide help and guidance to others in doing so.